PubMed - is a service of the U.S. National Library of Medicine that includes over 16 million citations from MEDLINE and other life science journals for biomedical articles back to the 1950s. PubMed includes links to full text articles and other related resources. http://www.ncbi.nlm.nih.gov/entrez/query.fcgi

GeneReviews - Online publication of expert-authored genetic disease reviews

OMIM - Online Mendelian Inheritance in Man. This database is a catalog of human genes and genetic disorders authored and edited by Dr. Victor A. McKusick and his colleagues at Johns Hopkins and elsewhere, and developed for the World Wide Web by NCBI, the National Center for Biotechnology Information. The database contains textual information and references. It also contains copious links to MEDLINE and sequence records in the Entrez system, and links to additional related resources at NCBI and elsewhere.

Genetic and Rare Conditions- http://www.kumc.edu/gec/support/index.html

Genetic Alliance Disease Directory- Search the Disease InfoSearch box to learn more about a genetic disease and to find a genetic advocacy group.

Genetics Home Reference - Genetics Home Reference provides consumer-friendly information about the effects of genetic variations on human health. This site may provide your patient with useful fact sheets.

Family Village Library - Your source for information about disabilities.

Genetic Resources on the Web (GROW)

National Human Genome Research Institute - http://www.genome.gov/

Information about the Human Genome Project- http://www.ornl.gov/sci/techresources/Human_Genome/home.shtml

Professional Organizations

National Society of Genetic Counselors (NSGC) -http://www.nsgc.org/

American Society of Human Genetics - http://genetics.faseb.org/genetics/ashg/ashgmenu.htm

American College of Medical Genetics (ACMG) -
http://www.faseb.org/genetics/acmg/acmgmenu.htm

International Society of Nurses in Genetics (ISONG)-
http://www.isong.org/

National Coalition for Health Professional Education in Genetics (NCHPEG)-
http://www.nchpeg.org

Secretary's Advisory Committee on Genetic Testing (SACGT)
http://www4.od.nih.gov/oba/sacgt.htm

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